Would you share your health data?
“There is a fundamental willingness by patients to share their data with us. In my experience, the closer the use of their data is tied to a personal situation or condition, the more pronounced is their willingness to contribute to medical progress.”
With whom would people share their health data?
66
with their doctor
43
Trang cá độ bóng đá uy tínwith their health plan or hospital
34
Trang cá độ bóng đá uy tínwith state/public health agencies
31
with pharmaceutical companies
Transparency is key for patients
“Ultimately, patients want to contribute to the bigger picture, they want better care for their disease and new treatments. The resistance comes from the use of data in a non-transparent way, in ways that weren’t made clear from the beginning.”Read Noga’s story
Patients should benefit
“Open exchange of data, including with competitors, would empower all actors to tap into the significant potential for value creation. Patients who make their data available should be able to benefit as a result. Not only directly as individuals but also indirectly by ensuring that the data is used to create maximal quality of life for patients.”Read Nicole’s story
When it comes to healthcare, consumers are most concerned about:
Privacy
80Trang cá độ bóng đá uy tínData security
76Trang cá độ bóng đá uy tínCost of healthcare
73Why we collect data
“It is a privilege to work with patient data. We need to treat that data with respect, ensuring protection of patient privacy and prevention of unauthorised access. But we should also be transparent with patients about our goals: Finding answers to the most important scientific questions is the prime reason why we are collecting data.”Learn more about our approach to patient data
Learn more
Yes to
transparency, yes to data sharing
How
open access improves patient care
Join Roche
Share it out
References
- Healthwatch England How do people feel about their data being shared by the NHS? (2018)